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What is SEED Teen?

SEED Teen is funded by the national Centers for Disease Control and Prevention (CDC). This new research study will collect updated health and development information about SEED children and their families. What we learn from this research may lead to better services and treatments for families and their teenagers with autism and other developmental delays. The study will also help us understand similarities and differences between teens with autism and teens without autism.

SEED Teen is a collaboration between CDC and the University of North Carolina at Chapel Hill with assistance from Johns Hopkins and Children’s Hospital of Philadelphia and will include families from four SEED sites located in Georgia, Maryland, North Carolina, and Pennsylvania.

Research Goals

1. To better understand how children with and without autism spectrum disorder develop as they become adolescents.

2. To better understand the healthcare and social service needs of adolescents with and without autism spectrum disorder and other developmental disabilities.

3. To understand the needs of families caring for adolescents with and without autism spectrum disorder and other developmental disabilities.

“We are so very grateful to the many families who have taken part in SEED over the years. With the data we have already collected, we are actively investigating relationships between ASD and genetic and environmental factors as well as the health and development of young children with and without ASD. The findings from those studies will be published soon and will provide new insights into our understanding of ASD in children. With SEED Teen we hope to extend our study to include a focus on the long-term health and service needs of children with ASD, children with other developmental disabilities, and children who are typically developing. Ultimately, we hope that the information from both SEED and SEED Teen might contribute to improved quality of life for children and their families.”
– Dr. Laura Schieve, CDC Epidemiologist